Rafael Amargo dances on top of La Concha for butterfly charity

  • The show was filmed by drones to raise awareness of the rare skin condition that affects between 3,200 and 5,000 people in Spain

Rafael Amargo himself took the initiative and offered to dance on top of La Concha, the most famous peak in the Sierra de Marbella at 1,200 metres high, in order to raise awareness for butterfly skin, a rare condition that between 3,200 and 5,000 people in Spain suffer from. The spectacle took place on Thursday and was filmed by drones and shared on social media in order to raise awareness for the terrible, chronic condition which leads to very fragile skin.

The Granada dancer and choreographer, a leader of contemporary Spanish dance, wasn’t alone when he climbed the second highest peak in the Sierra de Marbella. He was accompanied by members of the Marbella Fire Department, who are always aware of the needs of the Butterfly Skin charity, as well as members of the IPA police association.

In order to dance you need a good band. And there was one. Miguel Ángel Salas played the guitar, music was provided by Nuria Fergó, and José ‘El Pirata’ sang, all to support this charitable initiative.

This particular performance was encouraged by the Marbella firemen in collaboration with the Asociación Debra-Piel de Mariposa, to celebrate the second anniversary of the installation of a bench on top of La Concha in order to raise funds. It was the firemen who carried each of the parts of the seat to the top so that it could be installed on the mountain. The initiative raised awareness for the association, whose mission is to improve the quality of life of those affected and their families in Spain. Now, and thanks to Rafael Amargo, they hope to strengthen their resolve and continue defending the rights of people with butterfly skin within the framework of the public health and social system. The dancer arrived in an AVE train directly from Madrid and there was a presentation of the event in Marbella fire station before they made their ascent.

After reaching the summit he then proceeded to dance flamenco on top of the bench in solidarity with those who suffer from the condition. He said of the event: "Artists must respect associations, which, like Debra, do so much for people who suffer from certain illnesses," he said. The mayor of Marbella, Ángeles Muñoz, praised the selfless act, saying: "Rafael, you don't know how important your contribution is for us and for the charity."

The Asociación Debra-Piel de Mariposa is a not-for-profit founded in Marbella in 1993 by the parents of a child affected by the condition, with the aim of increasing the quality of life of those who suffer from the condition and their families.