Rafael Amargo, a dancer and choreographer from Granada, danced on top of La Concha, the most famous peak in the Sierra de Marbella on Thursday last week. His aim was to raise awareness for butterfly skin or Epidermolysis bullosa (EB), a rare condition that between 3,200 and 5,000 people in Spain suffer from. The spectacle was filmed by drones and shared on social media in order to raise awareness for the chronic condition which leads to very fragile skin.
The well-known dancer was accompanied by members of the Marbella fire department, great supporters of the butterfly skin charity, as well as members of the IPA police association.
Amargo danced on top of the bench that the local firefighters had carried up to the top of La Concha two years ago, another initiative to help Debra.
The initiative has helped to raise awareness for the association, whose mission is to improve the quality of life of those affected by the condition in Spain.
Now, thanks to Rafael Amargo, they hope to strengthen their resolve and continue defending the rights of people with butterfly skin within the framework of the public health and social system.
“Artists must respect associations, which, like Debra, do so much for people who suffer from certain illnesses,” Amargo said. The mayor of Marbella, Ángeles Muñoz, praised the selfless act, saying: “Rafael, you don't know how important your contribution is for us and for the charity.”