SUR IN ENGLISH
Eleven-year-old Chloe, from Marbella, suffers from a rare degenerative disease, and tragically paralysis is, at present, her predicted fate. In solidarity with Chloe's cause, fellow students at Marbella Montessori School will be walking from San ... Pedro Alcántara to Puerto Banús on 23 September. The pupils hope to raise funds and awareness of their classmate's rare disease through the charity event. Chloe is one of only 12 cases worldwide known to suffer this disease. From the age of three, ... Chloe's muscles and nervous system have been progressively deteriorating, due to a congenitive VPS13D mutation in a gene. While extreme fatigue and aches are just two of the symptoms which Chloe endures , the eventual loss of mobility seems inevitable.