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30 resultados para 'butterfly'

NOTICIAS 30 noticias encontradas

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Christmas song for butterfly children

Tony Bryant

A British expat singer is to release a charity Christmas song to raise funds for the 'butterfly children'. Composed and performed by Rashpal Singh, the song is called Sack of Dreams, a catchy festive composition produced by John Springate, former ... Bullosa (EB), the genetic skin condition known as butterfly skin. Rashpal came across the charity just a few months ago and was so disturbed by the effects of the disease; she felt the need to offer her support. "I only found out about Debra a few ... she has recorded a song for charity, although she is already making plans to continue her support of the butterfly children. "The good thing about recording a Christmas song is that it can be re-released each year, but I have decided to sing part of



Local candidate for Miss Mundo to raise awareness of butterfly skin disease


'butterfly skin disease' (Epidermolysis Bullosa). The beauty competition will determine who will represent Spain at Miss Universe, and all the candidates are asked to champion a charitable cause. Noemí, who is from Benahavís, has chosen the DEBRA butterfly ... skin association, which began in Marbella and is still based there. "Few people know about butterfly skin disease and I really want to help those who suffer from it, by encouraging funding for research to improve their lives," she said. The painful



Fundraising horse racing night for butterfly children

Tony Bryant

...improves the quality of life of people that suffer with Epidermolysis Bullosa (EB) - 'butterfly children'. The event, which consisted of ten races, included a free raffle that offered several prizes, including a sailing trip for four people, beauty ... España in November. "It was a fun evening and generous people raised 428 euros for Debra. I am overwhelmed by the amount raised in such a short time. All proceeds will go to help improve the quality of life of the butterfly children ," Ian explained.


What to do

Mods and rockers unite to support 'butterfly children'

Tony Bryant

...known as 'butterfly skin'. Organised by local musician and presenter One Wish Steve, and sponsored by K and M Services, the concert will be held in the Millenium Bar in Calahonda on Saturday 30 March. Under the banner of 'A Way of Life', the event will



The Butterfly Children event continues to give wings to people with butterfly skin


On 2-3 June, the prestigious Aloha Golf Club will host the sixteenth annual Butterfly Children Golf and Gala event. Every year DEBRA, the butterfly children charity, celebrates the start of the summer with an event that offers the opportunity for ... their social and health care team to continue growing and improving the lives of people that suffer with the very rare butterfly skin condition. The gala takes place on the 3 June on the golf club's terrace. Anyone who wants to attend the dinner can do



Running a marathon to show solidarity with 'Butterfly Skin' children

Mónica Pérez

...sufferers of Butterfly Skin disease". "When you meet these children you can't stop thinking about them, about their eyes, their smiles, their wish to live the same way as other children. So you decide to do whatever you can to help them," says Mora. He ... to help, while others can do their bit by making a donation. "Between us we can give them the wings they need to have a better life," he says. Butterfly Skin disease, otherwise known as Epidermolysis bullosa, is a rare and incurable genetic



Seven thousand euros for Butterfly Skin


The Debra Butterfly Skin Association raised 7,040 euros during their 2017 Christmas campaign. Volunteers from the charity wrapped presents in the FNAC shop in the La Cañada shopping centre to raise money. “The saying 'strength in numbers' has never



'Rock & Law' raises over 60,000 euros for the Debra charity


...concert will help the charity Debra to improve the quality of life for children and adults suffering with 'butterfly skin', a rare condition which causes the skin to become very fragile. A cheque for 60,304.47 euros was presented to representatives of



Education, in the kitchen and the cemetery


Les Roches Hospitality College Supporting DEBRA Les Roches Marbella Global Hospitality Education held the fifth edition of the 'Family Cooking Class' on 1 June to raise money for the DEBRA association (The Butterfly Children Charity), an NGO



Rafael Amargo dances on top of La Concha for butterfly charity

Nieves Castro

Rafael Amargo himself took the initiative and offered to dance on top of La Concha, the most famous peak in the Sierra de Marbella at 1,200 metres high, in order to raise awareness for butterfly skin, a rare condition that between 3,200 and 5,000 ... choreographer, a leader of contemporary Spanish dance, wasn’t alone when he climbed the second highest peak in the Sierra de Marbella. He was accompanied by members of the Marbella Fire Department, who are always aware of the needs of the Butterfly Skin charity, ... families in Spain. Now, and thanks to Rafael Amargo, they hope to strengthen their resolve and continue defending the rights of people with butterfly skin within the framework of the public health and social system. The dancer arrived in an AVE train